Mike is in a small room. Not a very nice one this time. Wish he could get a decent room - the days are so long.
He had his PFTs today. FEV1 is at 28%. Good news is they haven't gone down any further than the last time. The bad news is his FEV1 is at 28%. Urgh. Hopefully, this course of IV antibiotics will help him get back up to 50% or highter. We always hope and pray for higher. His oxygen sats were at 91% when he got there so they gave him oxygen. He continues to need oxygen at night as well as the feeding tube. His weight wasn't too bad so hopefully, he can maintain and go up from here. That may help. He is tired and resting a lot. He is, as always, in isolation. You can connect with him on facebook or his cell phone. You can write to him here:
Mike Van Deurzen
C/O University Hospital and Clinics D6/518
600 Highland Avenue
Madison, WI 53792
He's not sure how long he will stay this time. He is going to take it one week at a time. He will decide if he will stay or come home on IVs after the first week.
CF SUCKS! So glad God is bigger than CF and still in control.
P.S. Other good news - his port was accessed successfully. No "drano" needed. That was a blessing.
5 comments:
Hi Gina and Mike! We found your blog thrugh a post Katie made to FB. Its a great way to better understand what Mike has in front of him. Thanks for allowing us into his world and yours. We are thinking about you and hope the time in the hosptial goes quickly. What can we do to help? If he's in isolation, can he have visitors?
Love, Johnna and Bab
You KNOW I meant Johnna and BOB, but you can call him Bab next time we see you
LOL I like Bab better!! :)
I forgot to sign in but that was me!! :)
Hi Gina, I found your blog from an e-mail from Johnna & Baa,no Bah, no Bob. Anyway, I am so glad we found it so we can know what is going on. Mike isn't the best in calling and letting us know. We love Mike would do anything for him. Let us know if there is anything we can do. Can Mike have visitors? If now let us know when. We will visit the blog often now we know it is here to keep an update on Mike. Love, Cathy & Jean
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