Saturday, May 29, 2010

May is CF Awareness Month

If you are reading my blog you are probably a relative or close friend and you are very familiar with Cystic Fibrosis. You have read all about this disease and understand how devastating it can be. In May we take a moment and refocus our efforts once again on getting the word out about CF. Why? Because CF awareness saves lives. It's that simple. There are two fundamental ways this happens.

1. Early Detection - By telling others about the symptoms of CF like chronic lung infections, poor weight gain etc., someone may pick up on a diagnosis earlier than if they had had no idea. This has already happened in our family. Early detection is key to living healthier and longer in CF. When others learn about CF lives can be saved.

2. Helping to find a cure - When people know and understand that CF is a - still always fatal disease - they want to help us find a cure. Most states already have tests for infants to tell if a child has CF. This early detection along with life saving drugs and better enzymes to help with digestion have increased the life expectancy to 37 years. But every day CF patients are still dying waiting for a cure. Spreading CF awareness to aid in helping fund research saves lives.

So won't you please help us spread the word about CF? Decide right now to talk to someone new about CF. You can even tell them about your nephew, cousin, friend Mike and how this affects him and so many others. Then tell more people.

Research has come so far. I can still remember when it didn't seem like we would ever find the gene for CF. Now we not only have that but there are many new treatments to help fight the infections as well as promising new breakthroughs that will actually get to the root of the problem with the CF gene. If you have been blessed and are able please consider making a donation to the Cystic Fibrosis Foundation. Rest assured that your money will be well spent as only 10% of each dollar goes to administration costs. Yes, that is correct 90% goes directly into research for finding a cure. I have a button just to the left that will take you to the CFF website. On the right side there is an orange button where you can securely make a donation. Or simply click here.

There is one other way you can help. Please consider being an organ donor. I also have a button to the left that will take you to a website to give you more information. Many CF patients are waiting for a second chance at life through double lung transplants. Talk to your families and let them know your wish and then sign your driver's license letting them know of your selfless, life saving decision.

Thank you for your support. Whether financially, volunteering, becoming an organ donor or telling others about CF - it all helps and we thank you!

I know I'm a little late to the May CF Awareness party but any month is a great month to think about CF awareness. THANK YOU!

I don't know what the future holds but I know who holds the future . . .
Blessings!

No comments: